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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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i am on mtx etc 2yrs now and was out in the sun easter weekend not to sit as i am not a lover of the heat,i was pottering about alot, i ended up with both my arms looking and feeling like bubble wrap, scarey, i spoke to rhummy nurse and was told to cover up,use sun screen(50+) or stay indoors or shade,i was told when started mtx about eyes,liver and hair not sun damage,now i am worried about my skin,i am off to spain in july but i always stay in the shade or go indoors when sun at its peak,my excuse for a lie down,has anyone had this on mtx and is there any thing else to be aware of or is it a personal thing.
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Dorothy Methotrexate does increase sensitivity to the sun. You should use a high factor sun cream when in the sun and avoid strong sunlight. It's also recommended that a light barrier cream is used at all times (even in winter) to protect the skin from exposure. In a phototoxic reaction, drug molecules absorb the energy of a specific UV wavelength, which causes the molecule to undergo a chemical change and emit energy that damages surrounding tissues. Usually displaying as redness or sunburn. Photo sensitivity can also be caused by Hydroxychloroquine, Sulfasalasine and Myocrisin (Gold), as well as Methotrexate. Not what you want to hear but better to be safe than sorry. Here's a link to a blog I wrote on 'Photosensitivity and RA Drugs' which you will find on the NRAS Health Unlocked site. If you can't access it for any reason let me know and I'll copy it here! Hope this is helpful, Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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It is really important not to get too much sun. I have been in the garden for just an hour today and even though I have smothered on Factor 30, my wretched feet have blistered and I can't put my shoes on. Enjoy your holiday, but try to be very disciplined about covering yourself up - and stay in the shade as much as possible.
Love Jeanxxxx
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Rank: Advanced Member Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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thanks,i am on hydroxy as well, i will obey the rules and have looked that page up thanks lynn,no wonder we get down at times,i feel like im 2yrs old again with the do's and dont's,jean hope feet get better they tend to get forgotten.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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There's been recent post on the forum about sun and MTX, so a few weeks ago when we went away I took the advice given and got my factor 50 out. Got hold of it and tried to squeeze some out. Guess what???? I couldn't. Not to be beaten I put it down on the work surface with the end hanging over the side. Pressed hard with the palm of my hand and out came a load. It was Boots own brand (the sort that white washes you), most of what was in my hand ended up on a tissue and in the bin. I then tried to rub it it but arms just didn't want to play ball. Did manage it in the end after a lot of effort.
What I do now is use the one that you spray out. I put it down on a surface, put my right hand to catch what comes out while I am pressing the spray thing down with my left hand. For those of you that have read my acceptance thread......another silly little thing that I now find difficult to do.
Just want to add that I did ask my consultant about sun and MTX and he did say that it doesn't affect everyone.
Paula
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Rank: Advanced Member  Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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Hi Paula
I have to say that the sun doesn't seem to affect me at all but I do go brown straight away. Maybe it only affects fair skin. I suppose it would seem sensible that fair skin would burn more but maybe someone on the forum will say otherwise. Maybe I am just lucky in that respect.
Love Sheila G
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Rank: Advanced Member
Groups: Registered
Joined: 8/1/2010
Posts: 255
Location: hampshire
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I'm on hydroxy and mtx but as yet haven't had a problem with the sun. On the contrary, I had to leave my legs in the sun for the whole of the easter weekend just to get a tinge of colour. I tend to stay in the shade normally but I really wanted to get rid of the pasty winter white legs. Sue 
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Rank: Advanced Member Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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thanks everyone this is all good to read,there is so much i took for granted that now is just annoying, i am glad my daughter will be with me for all the things i cant quite do,i got the spray 50+ but it is lovely green as its for kids my mistake but i dont care it dries clear i hope,now i need to hat hunt and im ready,my skin has settled down a bit after using loads of dermol and staying out of sun,thanks again.good luck for summer.
paula i lost a whole tube the thing was so difficult to squeeze i put it between my knees and yes the floor got it,
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Rank: Advanced Member  Groups: Registered
Joined: 8/30/2010 Posts: 507 Location: Gravesend
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I think , as with everything , that you need to take into account the biggest variable of all ... the patient!. This variable is the reason why we are all on different drugs , why different drugs effect different people , and probably why some will suffer to a greater degree from photo sensitivity than others . Ultimately as a patient we listen to our own bodies and are best placed , with information and a certain amount of direction, to make choices that are good for us as individuals . We are all different yet somewhat similar :) Rich "The difference between 'involvement' and 'commitment' is like an eggs-and-ham breakfast: the chicken was 'involved' - the pig was 'committed'."
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Sue You've given me a right giggle..........leaving your legs out in the sun all Easter. I've got visions of a pair of legs all by themselves in the garden. You've have well and truly been legless all Easter.  Dorothy I went to Spain July 08 and 09. I coped with the sun well, it really wasn't as hot as I thought it would of been, I wasn't on MTX mind you at the time, just SLZ. Just keep plastering yourself in factor 50, sit in the shade as much as you can and try to keep out of it when it's really hot. Have a lovely time. Paula x
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Rank: Advanced Member Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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Hi Rich
You have hit the nail on the head. We are desparate for someone to give us an answer that makes us feel better and really because we are all different we are not going to get one. Nevertheless, we will continue to ask and choose the answer that makes us feel better. We live in hope.
Sheila x
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Rank: Advanced Member Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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THANKS RICH SO TRUE.give another laugh for you. i have been using the sun spray,i was round my friends she had her 3 grandchildren round, as per i was in the shade trying out my spray and yes turned green at first,the 2yr old was rolling about giggling,im so happy i am now known as dolly hulk, they were so good they watched to make sure nowhere got missed, ah babes! i found a lovely wide brimmed hat at tesco for £3.50 and that just sent them over the edge when i put it on,i am so happy to keep them amused, not only the hulk but now agatha christie,children are so sweet 
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